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      Winter vaccinations!   11/03/2016

      It is very important for people with chronic diseases, such as SLE,and for those people taking corticosteroids and immunosuppressants, including chemotherapy drugs, should go to their doctor to be immunised against flu. Flu is not a bad cold! It can be dangerous. Apart from the annual flu jab, ask your doctor about the pneumovax vaccine which will help prevent serious problems with the lungs. Those with asthma should also ask about the various kinds of vaccines available. Finally, Herpes Zoster infections can lead to the risk of strokes in certain populations which include, rheumatoid arthritis and SLE. There is a new post with information, along with a video. Be well! Ros
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      Blogs!   03/27/2017

      All registered Members can write their own Blog here! Just click on Blog and select a title!
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      Sign Up & Date of Birth   08/26/2017

      When you Sign Up,  Please use the following to complete the Date of Birth entry: nn-nn-nnnn where n=number. Thus, if your birthday is 5th May 1968, enter: 05-05-1968. Use the “-“ separator and not the “/“.                                                
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      GHIC   09/08/2017

      I am excited to announce that LUpus Patients Understanding & Support (LUPUS) is linking with The Graham Hughes International Charity (GHIC). This means I will be posting articles from Professor Hughes here. About 25% of those with SLE also have Hughes Syndrome. As more research is being done, its findings are extremely important for those who have this condition. Like SLE, diagnosis can take a very long time.


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Abiola last won the day on March 8 2017

Abiola had the most liked content!

About Abiola

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  • Birthday 01/20/1958

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  1. Pregnancy Loss

    I thought many here would be interested in this. While tweeting various updates about the Edinburgh Fringe I became aware of a play about Pregnancy Loss called ' Killer Cells' When I read the summary I suspected it may be about APS so I tweeted them and had a very good discussion. The Company is called Avant Productions with 3 Crate Productions. The story is an optimistic one but follows the fate of 5 recurrent miscarriage ladies. This is their first time at Edinburgh and they are hoping to tour it next year. I hope they are able to do so. I will be keeping in touch so will let you all know any future dates.
  2. Been asked to share something in writing for World Lupus Day...sadly I am feeling not too good so I am afraid it won't be a cosy read. I will be mentioning this place in positive tones though. Will post for you all to read. xx

    1. Abiola


      You get to see it here first....only right as you are my friends and supporters. Of course on another day the symptoms and emotions may have been totally different and lack of space means I had to opt for more brevity than I would like. So this is my Lupus today.....please feel free to comment....Whilst I respect the fact that your symptoms and feelings may be totally different. I hope you like or at least feel I have done a reasonable job. Will post it below shortly as my arm needs a rest. xc



  3. Hi Dawn

    Where are you! You might ask me the same of course. You're on FB? I am, called Hermione Golightly

    Clare XXXX